@macromeh I couldn’t get it until my immune system recovered from chemo and that took around 3.5 years (most of my bone marrow was killed and I nearly needed a stem cell transplant. Fortunately it started to recover just as they started to talk about doing that). Then I was broke and the copay is around $187 each shot or something which I don’t have due to losing my job over two cancers in one year, the problems related to chemo, then finding a new job with a big gap with no good way to explain it. Well plus age discrimination. It’s on my list but more immediate things keep bumping it down. Need to deal with that though before I need chemo again as I do not, ever, want a repeat.
@ZeroCharisma That is the stupidest thing I have heard!! You’d already shown you are vulnerable. If your doctor is an employee of a hospital system use their patient advocacy department to argue that based on your history you need the shots.
@Kidsandliz One fine evening a while back, my husband started to get a rash. And it got worse. His face puffed up so badly, his eyes were almost shut. He didn’t realize how bad it was until I took a picture and showed him.
We ended up at an emergency room.
He had chicken pox. He’d never had it as a child, never got the vaccine (which surprises me, because his parents weren’t crazy people). When that was clearing up he got hit with shingles.All within a couple of weeks.
I took him to urgent care that time, left him in the car and went inside the building to explain the situation. Since there was a pregnant nurse there, they had to get her out of the building before they brought him in .
@lisaviolet When my kid was here maybe 2 mo from Cambodia her entire grade school class took a field trip. One kid on that trip had shingles. Half the kids got chicken pox (and most had been vaccinated - my kid hadn’t yet because she was so underweight the pediatrician wanted to wait). The antiviral stopped it in it’s tracks in 24 hours which was amazing. They stuck us in their only air pressure negative room at the clinic and she had immediate attention rather than having to wait our turn. They wanted us OUT of there ASAP. LOL
Kidney stones. Bad pain. How bad is it? Well, kidney stones are disqualifying for an FAA medical requirement for a pilot’s license.
The FAA medial weenies are afraid that a pilot who has had kidney stones at any time, may suffer an attack while airborne and PIC and become so incapacitated that he/she can no longer safely pilot an aircraft. See here.
@Jackinga Yeah I would agree those are really, really bad too. In some ways more acute than shingles because more of your body hurts at an intense level. With shingles it feels like you have put part of your body in a hot frying pan and left it there, in my case, for 6 months, and once a second have the dentist hit a nerve with a drill with no novocain for hours on end each day and night.
@Jackinga@Kidsandliz Kidney stones without a doubt-totally debilitating-no way to get comfortable. Both my wife and I were hospitalized for them-think I caught them from her LOL.
Re shingles-have gotten both vaccines now but about 25 years ago got shingles on my face and because of the way if effects the nerves, there is a clear line of demarcation between where you have it and where you don’t. I had it on my face so half my face was red and other half looked normal. Very dangerous because if it gets into the eyes can cause blindness. Too bad it wasn’t around Halloween as I could have won a best mask contest hands down. Got on the elevator at my office and someone getting on a different floor took one look at me and decided not to get on-I looked that scary.
@Jackinga Just to be clear, you can still get certified if you report kidney stones. You may be required to jump thru a few more hoops, but I’ve never heard of a pilot not being cleared solely due to kidney stones.
Foot pain. Still trying to recover from a 2019 work accident that fractured my left heel. Podiatrist says I have numbness and plantar fasciitis and gave me a sheet with stretching exercises that really hasn’t helped much. The only things that feel good are a constant massage to lessen pain/cramps and cooling sensations like applying water or air from a fan like I’m putting those times when my foot feels like it’s on fire.
@JT954 Agreed, foot pain is bad. I’m still recovering () from a 1993 accident that fractured my left heel too (a steel plate and five screws remain in there). On bad days I still limp, not so much from the fracture, but from the associated sprain. Regular walking/hiking on varied terrain seems to help keep it loose. Good quality, supportive footwear is a must.
I had surgery on my foot at a time I experienced chronic severe migraines. The vicodin helped my head, but not my foot. They gave me percocet, which helped my foot but not my head. I went back to vicodin because I’d take foot surgery pain over a migraine at that point.
Avascular Necrosis. Stage 4. I literally had my hip die from no blood flow and become a crumbling sponge inside my body. Doctors here didn’t know how / didn’t want to touch it so I suffered even with a high pain tolerance for 8+ months. Finally, a young but brilliant Dr at Mayo Clinic gave me a new hip in 2 hrs. I was walking pain free 6 hrs later.
Gallstones. I ended up in emergency due to gallstones. Pain level +11 on a 1-10 scale. Had my gallbladder removed. Now all the stuff that made the gallstones (the gall bladder does have a job to do. some sort of filtering apparatus) dumps into my stomach and I have really bad reflux at times.
Sciatica is pretty bad, too. And tooth pain. Tooth pain is no picnic.
My gallbladder erupted after I had a massage (that week early had a scan for gull stones to set up surgery and the tech said she didn’t think I’d make it to surgery) waited a day at home before I went to the er bc I didn’t know what it was then once in the er had to wait 3 more days for the blood thinners to clear my system it was horrible but that was nothing to some one the other things I’ve been through.
@lisaviolet Yeah pain can sure screw with your blood pressure. When I fell down those 4 cement and metal stairs and screwed up my leg and ankle my BP in the ER was running (top number) in the 190’s. They asked me why I wasn’t taking meds for my high BP. I told them, if you’d give me meds for pain you’d take care of giving me meds for high BP. Actually it took 8 DAYS to get adequate pain control. It was agonizing.
@lisaviolet a gallstone tried to kill me. It lodged in the spot that branches out to both the pancreas and liver, causing both to be inflamed. It took 2 surgeries and a long hospital stay before I was okay.
Second worst pain is definitely tooth pain. (It’s worse than nerve pain, IMO.)
I’d had gb pain for years, I knew what it was when I got it. It usually just went away (when the stone passed). But that last time was the first time I threw up with it. And the pain didn’t go away. A week later, it still hurt.
It was a Sunday morning, I told my husband how bad it was, I really need to see a doctor, he says “can it wait two hours, I’m painting a cylinder” (part of his work). I just stared at him.
At Urgent Care, they checked me over “who’s your insurance?” so they knew which hospital to send me to. I was there for three days. It took two surgeries for me, first they had to get all of the stones out of the bile duct, then they took the gallbladder out. The worst part was they scraped my vocal cords and I couldn’t sing worth a crap for years. I’d cry in the car because I couldn’t sing. It’s funny now…
I can’t even imagine what you went through. Have you had any ongoing problems because of it? Or did that take care of everything?
I live with chronic pain in my neck, back and arm everyday. Take drugs (prescription) and still have average pain of about a 6. I was in a really bad work injury. I think the worst pain I’ve ever been in is when I had an ovary torsion (meaning it twisted and died) it was about two or three weeks before the dr did surgery bc he couldn’t see it on the scans and thought it was just bad cysts and it’s nearly impossible to get after you’ve had a hysterectomy which I’ve had. I couldn’t get off the couch bc the pain was probably a 20. Didn’t brush my teeth for a week and half bc by the time I made it to the bathroom I was about to pass out from pain. I was taking narcotics like you wouldn’t believe and they didn’t even touch the the pain. (I have a extremely high tolerance for pain medicine but low tolerance for pain). I will never forget that pain. Another time was when I broke my stitches from my hysterectomy and I couldn’t go into surgery bc of blood thinners but they had to stop the bleeding (inside me) while I was awake so I wouldn’t bleed out. I won’t give you details but if you’ve ever seen American Psycho and the coat hanger screen that’s just getting started.
But I have to say living with migraines, if you’ve never been stuck in your closet for days on end bc even the slightest glimpse of light, sound from a needle dropping, the fact that you can smell everything but even a sip of water will make you hurl, and your whole body hurts to the point you think your dying. That is probably the worst pain.
@dyounghbic@Star2236 Ask about it. The worst they can say is you aren’t right for it. After the string of bad doctoring I’ve had in this town, including at the university, my trust in being told what is correct has dropped. And my trust that they are keeping up isn’t all that high either. Hopefully you don’t have that problem where you live.
Oh I forgot the time I had a cerebral Venus thrombosis, that was a blast. Then had a stroke while in the hospital. Now that was definitely the worst pain I’ve ever been in. I definitely thought I was gonna die that day and the 3 months I can’t even remember being in the fucking hospital.
@grammycakes I had THAT same thing happen after I shattered my hip in a car accident, the top of my femar died and turned to mush. I also broke both legs, both feet and had a degloving of my scalp! It’s a miracle i’m alive. (Recovery from the brain injury took a while too, thank goodness it was minor TBI!) I remember it was the worst pain ever! I was trying not to be a bother to anyone over the Thanksgiving holiday and waited days before going to the ER, it took almost a year after piecing it back together before it died. I had a high fever and was delirious from the pain. I was to young for a hip replacement, I was 31, they said by the time I was 60 i’d run out of bone to put another new hip into. They ended up fusing it, not once but twice, and took bone from my other hip. Because of complications it wouldn’t heal and I ended up in a full spika body cast for over a year. That’s the kind of cast that you sometime see babies or small children in, even the x-ray techs would comment how they’ve never seen a adult in one. When the body cast came off it felt like my entire lower half had spilled out of my skin. I would have given ANYTHING to have them put me back in that cast!
I must have a high pain tolerance after everything i’ve endured. Migraine pain out does kidney stone pain for me. RSD pain is the worst. When you feel like your going to bust out of your skin from the swelling and your burning like you’re a log in the fire pit it’s just too much! Pain meds are now my friend!
Can’t wait to see what a skin graft is going to feel like next week, oh boy!
@Lynnerizer oh my!! So young! I was in my late 60s. I pray that the graft will help. After a year in a body cast, not moving your muscles, the rehab must be grueling. I hope you have loving family / people around you. Please take care. Sending positivity your way, for sure!!